Longitudinal Trajectories of Health Related Quality of Life in Danish Family Members of Individuals with Severe Brain Injury

Research output: Contribution to journalJournal articleResearchpeer-review

Standard

Longitudinal Trajectories of Health Related Quality of Life in Danish Family Members of Individuals with Severe Brain Injury. / Norup, Anne; Snipes, Daniel J. ; Siert, Lars; Mortensen, Erik Lykke; Perrin, Paul B. ; Arango-Lasprilla, Juan Carlos.

In: The Australian Journal of Rehabilitation Counselling, Vol. 19, No. 2, 2013, p. 71-83.

Research output: Contribution to journalJournal articleResearchpeer-review

Harvard

Norup, A, Snipes, DJ, Siert, L, Mortensen, EL, Perrin, PB & Arango-Lasprilla, JC 2013, 'Longitudinal Trajectories of Health Related Quality of Life in Danish Family Members of Individuals with Severe Brain Injury', The Australian Journal of Rehabilitation Counselling, vol. 19, no. 2, pp. 71-83. https://doi.org/10.1017/jrc.2013.12

APA

Norup, A., Snipes, D. J., Siert, L., Mortensen, E. L., Perrin, P. B., & Arango-Lasprilla, J. C. (2013). Longitudinal Trajectories of Health Related Quality of Life in Danish Family Members of Individuals with Severe Brain Injury. The Australian Journal of Rehabilitation Counselling, 19(2), 71-83. https://doi.org/10.1017/jrc.2013.12

Vancouver

Norup A, Snipes DJ, Siert L, Mortensen EL, Perrin PB, Arango-Lasprilla JC. Longitudinal Trajectories of Health Related Quality of Life in Danish Family Members of Individuals with Severe Brain Injury. The Australian Journal of Rehabilitation Counselling. 2013;19(2):71-83. https://doi.org/10.1017/jrc.2013.12

Author

Norup, Anne ; Snipes, Daniel J. ; Siert, Lars ; Mortensen, Erik Lykke ; Perrin, Paul B. ; Arango-Lasprilla, Juan Carlos. / Longitudinal Trajectories of Health Related Quality of Life in Danish Family Members of Individuals with Severe Brain Injury. In: The Australian Journal of Rehabilitation Counselling. 2013 ; Vol. 19, No. 2. pp. 71-83.

Bibtex

@article{c64017e1be7841b4a56ca3e43a357d2d,
title = "Longitudinal Trajectories of Health Related Quality of Life in Danish Family Members of Individuals with Severe Brain Injury",
abstract = "Scant research has examined health-related quality of life (HRQoL) in family members of patients with severe brain injury, even less has been done in Scandinavian countries, and none has examined this construct longitudinally. The current study therefore used multilevel modelling to investigate the trajectories of HRQoL in 94 Danish family members of patients with severe brain injury at five time points, beginning at the patient's stay in a neuro intensive care unit through one year after injury. The family members’ HRQoL scores significantly and strongly increased over time, and Role Limitations – Emotional scores were higher when patients had high Rancho Los Amigos Scale scores at admission to early intensive rehabilitation in hospital. These results suggest that the acute and sub-acute periods after brain injury are an extremely difficult time psychologically for many families, and family-based mental health interventions during the acute and sub-acute phases are critical, especially for families who have a patient with severe deficits.",
author = "Anne Norup and Snipes, {Daniel J.} and Lars Siert and Mortensen, {Erik Lykke} and Perrin, {Paul B.} and Arango-Lasprilla, {Juan Carlos}",
year = "2013",
doi = "10.1017/jrc.2013.12",
language = "Dansk",
volume = "19",
pages = "71--83",
journal = "The Australian Journal of Rehabilitation Counselling",
issn = "1323-8922",
publisher = "Cambridge University Press",
number = "2",

}

RIS

TY - JOUR

T1 - Longitudinal Trajectories of Health Related Quality of Life in Danish Family Members of Individuals with Severe Brain Injury

AU - Norup, Anne

AU - Snipes, Daniel J.

AU - Siert, Lars

AU - Mortensen, Erik Lykke

AU - Perrin, Paul B.

AU - Arango-Lasprilla, Juan Carlos

PY - 2013

Y1 - 2013

N2 - Scant research has examined health-related quality of life (HRQoL) in family members of patients with severe brain injury, even less has been done in Scandinavian countries, and none has examined this construct longitudinally. The current study therefore used multilevel modelling to investigate the trajectories of HRQoL in 94 Danish family members of patients with severe brain injury at five time points, beginning at the patient's stay in a neuro intensive care unit through one year after injury. The family members’ HRQoL scores significantly and strongly increased over time, and Role Limitations – Emotional scores were higher when patients had high Rancho Los Amigos Scale scores at admission to early intensive rehabilitation in hospital. These results suggest that the acute and sub-acute periods after brain injury are an extremely difficult time psychologically for many families, and family-based mental health interventions during the acute and sub-acute phases are critical, especially for families who have a patient with severe deficits.

AB - Scant research has examined health-related quality of life (HRQoL) in family members of patients with severe brain injury, even less has been done in Scandinavian countries, and none has examined this construct longitudinally. The current study therefore used multilevel modelling to investigate the trajectories of HRQoL in 94 Danish family members of patients with severe brain injury at five time points, beginning at the patient's stay in a neuro intensive care unit through one year after injury. The family members’ HRQoL scores significantly and strongly increased over time, and Role Limitations – Emotional scores were higher when patients had high Rancho Los Amigos Scale scores at admission to early intensive rehabilitation in hospital. These results suggest that the acute and sub-acute periods after brain injury are an extremely difficult time psychologically for many families, and family-based mental health interventions during the acute and sub-acute phases are critical, especially for families who have a patient with severe deficits.

U2 - 10.1017/jrc.2013.12

DO - 10.1017/jrc.2013.12

M3 - Tidsskriftartikel

VL - 19

SP - 71

EP - 83

JO - The Australian Journal of Rehabilitation Counselling

JF - The Australian Journal of Rehabilitation Counselling

SN - 1323-8922

IS - 2

ER -

ID: 76612446