Ethical dilemmas in social media health research

Research output: Contribution to conferenceConference abstract for conferenceResearch

Standard

Ethical dilemmas in social media health research. / Meyrowitsch, Dan Wolf; Thomassen, Jacob Lauge; Konradsen, Flemming; Kingod, Natasja; Sørensen, Jane Brandt.

2019. 20 Abstract from The Digitally Engaged Patient, Copenhagen, Denmark.

Research output: Contribution to conferenceConference abstract for conferenceResearch

Harvard

Meyrowitsch, DW, Thomassen, JL, Konradsen, F, Kingod, N & Sørensen, JB 2019, 'Ethical dilemmas in social media health research', Copenhagen, Denmark, 11/06/2019 - 12/06/2019, pp. 20.

APA

Meyrowitsch, D. W., Thomassen, J. L., Konradsen, F., Kingod, N., & Sørensen, J. B. (2019). Ethical dilemmas in social media health research. 20. Abstract from The Digitally Engaged Patient, Copenhagen, Denmark.

Vancouver

Meyrowitsch DW, Thomassen JL, Konradsen F, Kingod N, Sørensen JB. Ethical dilemmas in social media health research. 2019. Abstract from The Digitally Engaged Patient, Copenhagen, Denmark.

Author

Meyrowitsch, Dan Wolf ; Thomassen, Jacob Lauge ; Konradsen, Flemming ; Kingod, Natasja ; Sørensen, Jane Brandt. / Ethical dilemmas in social media health research. Abstract from The Digitally Engaged Patient, Copenhagen, Denmark.1 p.

Bibtex

@conference{7f6192b4bb0f4fb985cff3dc561b375f,
title = "Ethical dilemmas in social media health research",
abstract = "An increasing number of individuals worldwide engage in online communication concerning human health and researchers have identified the need to gain further insights on how individuals and communities engage and respond to particular health topics discussed on social media. However, this type of research is not without ethical dilemmas. Though ethical guidelines on the conduct of online research do exist, there is a lack of practical tools and procedures for the initiation and implementation of research on social media platforms in a thoughtful and respectful manner. When carrying out research involving human subjects, three ethical concepts are central: 1) confidentiality; 2) anonymity; and 3) informed consent. These dimensions need rethinking when conducting research on social media platforms. For instance, a researcher stepping into a social media community would initially present herself, the objective of the research, and implications for participants – as in any other research project. However, it is a challenge to maintain informed consent to a study in a rapidly changing online community with a changing composition of members. Based on hands-on experiences from an ongoing research project in a Danish Facebook group of users and group administrators living with suicidal thoughts, we have encountered a range of challenges related to all three ethical concepts. These challenges have lead us to explore new paths and solutions. In this presentation, we will share our experiences and reflections.",
author = "Meyrowitsch, {Dan Wolf} and Thomassen, {Jacob Lauge} and Flemming Konradsen and Natasja Kingod and S{\o}rensen, {Jane Brandt}",
year = "2019",
language = "English",
pages = "20",
note = "null ; Conference date: 11-06-2019 Through 12-06-2019",
url = "https://eventsignup.ku.dk/VITAL-DEPConference/call-for-abstracts.html",

}

RIS

TY - ABST

T1 - Ethical dilemmas in social media health research

AU - Meyrowitsch, Dan Wolf

AU - Thomassen, Jacob Lauge

AU - Konradsen, Flemming

AU - Kingod, Natasja

AU - Sørensen, Jane Brandt

PY - 2019

Y1 - 2019

N2 - An increasing number of individuals worldwide engage in online communication concerning human health and researchers have identified the need to gain further insights on how individuals and communities engage and respond to particular health topics discussed on social media. However, this type of research is not without ethical dilemmas. Though ethical guidelines on the conduct of online research do exist, there is a lack of practical tools and procedures for the initiation and implementation of research on social media platforms in a thoughtful and respectful manner. When carrying out research involving human subjects, three ethical concepts are central: 1) confidentiality; 2) anonymity; and 3) informed consent. These dimensions need rethinking when conducting research on social media platforms. For instance, a researcher stepping into a social media community would initially present herself, the objective of the research, and implications for participants – as in any other research project. However, it is a challenge to maintain informed consent to a study in a rapidly changing online community with a changing composition of members. Based on hands-on experiences from an ongoing research project in a Danish Facebook group of users and group administrators living with suicidal thoughts, we have encountered a range of challenges related to all three ethical concepts. These challenges have lead us to explore new paths and solutions. In this presentation, we will share our experiences and reflections.

AB - An increasing number of individuals worldwide engage in online communication concerning human health and researchers have identified the need to gain further insights on how individuals and communities engage and respond to particular health topics discussed on social media. However, this type of research is not without ethical dilemmas. Though ethical guidelines on the conduct of online research do exist, there is a lack of practical tools and procedures for the initiation and implementation of research on social media platforms in a thoughtful and respectful manner. When carrying out research involving human subjects, three ethical concepts are central: 1) confidentiality; 2) anonymity; and 3) informed consent. These dimensions need rethinking when conducting research on social media platforms. For instance, a researcher stepping into a social media community would initially present herself, the objective of the research, and implications for participants – as in any other research project. However, it is a challenge to maintain informed consent to a study in a rapidly changing online community with a changing composition of members. Based on hands-on experiences from an ongoing research project in a Danish Facebook group of users and group administrators living with suicidal thoughts, we have encountered a range of challenges related to all three ethical concepts. These challenges have lead us to explore new paths and solutions. In this presentation, we will share our experiences and reflections.

M3 - Conference abstract for conference

SP - 20

ER -

ID: 222319680