MeST seminar with Maya Sabatello: Enablers and Disablers of Inclusion in Precision Medicine Research

Precision medicine research is gaining momentum across the healthcare landscape in the U.S. and elsewhere. Although in its infancy, precision medicine research holds promise for tailoring disease diagnosis, treatment and prevention to individual variability in genes, environment, and lifestyle. It is also hoped that precision medicine research will curtail the deep health disparities that have plagued the country; indeed, precision medicine is increasingly viewed as the new, future-looking healthcare model for improving individual and public health. These promises may be particularly salient for those who can be key beneficiaries of precision medicine research but often experience health disparities.

This presentation will focus on two groups that are often underrepresented in health research: teenagers (ages 14-17) and people with disabilities. It will share findings from national studies that were conducted in the U.S. that explored interest in and barriers to participation in precision medicine research, discuss the ethical, legal, and social dilemmas that arise, and consider the measures needed for ensuring inclusion in precision medicine research initiatives. Better understanding of the unique barriers faced by such groups can facilitate the ultimate goal of precision medicine research to translate findings from research to bedside and public health benefits.

Maya Sabatello is an Assistant Professor of Clinical Bioethics, and the Co-Director of the Precision Medicine: Ethics, Politics, and Culture Project, at the Department of Psychiatry, Columbia University. Her research focuses on law, society, medicine, and disability and on the ethical, legal and social implications of genetics. Recent projects explored the uses of psychiatric genetics evidence in civil litigation; the psychosocial impact of genomic data on adolescents and family relations; social and policy dilemmas in reproductive technologies; and disability inclusion in precision medicine research. Dr. Sabatello has extensive experience in policy-making and work with national and international organizations to promote human and disability rights. She serves as a member at various genomic- and ethics-related committees at Columbia University and elsewhere, including the Institutional Review Board (IRB) of the national Precision Medicine Initiative, the All of Us Research Program.

Speaker: Assistant Professor and Co-Director Maya Sabatello, Columbia University

Everybody is welcome!