Biobanking: Ethical Issues

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This article outlines the main ethical issues debated in relation to population-based genetic research biobanks. There aremany types of biobanking, but few have attracted as much ethical attention as population-based ones. Some possible reasonsfor this are discussed along with considerations of the political landscape of biobank ethics before the themes dominating theliterature are presented: consent to participation; good governance; fairness and reciprocity; commercialization; trust andtrustworthiness; and unintended effects such as breaches of confidentiality and privacy, surveillance, and social changes.
Original languageEnglish
Title of host publicationInternational Encyclopedia of the Social & Behavioral Sciences : (Second Edition)
EditorsJames D. Wright
Number of pages6
Publication date2015
ISBN (Print)9780080970868
ISBN (Electronic)9780080970875
Publication statusPublished - 2015

ID: 135738300