Data-Sharing Politics and the Logics of Competition in Biobanking
Research output: Chapter in Book/Report/Conference proceeding › Book chapter › Research › peer-review
This chapter explores the challenges associated with the competition logics of large prospective cohort (LPC) biobanks within the European context by identifying the challenges associated with the sharing of samples and data. LPC biobanking involves large collections of human tissue samples from specific populations (usually national). The collections are from, usually, healthy donors who are then tracked over decades to see what diseases they develop over the course of their lifespan. LPC biobanks, therefore, also collect large amounts of health and lifestyle information that can be attributed to the tissue samples collected from the donors. The chapter evaluates the emerging tension between policies and practices in LPC biobanking with reference to the sharing of samples, and re-considers the applicability of social scientific theories that have sought to explain the emerging bio-economy.
|Title of host publication||Bioeconomies : Life, Technology, and Capital in the 21st Century|
|Editors||Vincenzo Pavone, Joanna Goven|
|Number of pages||20|
|Publication status||Published - 2017|
- Faculty of Health and Medical Sciences - Biobanking, bioeconomy, data-sharing, Open Access, Cohort, biocapital, biovalue, Genetics, Population