Development of a Web-based concept for patients with ulcerative colitis and 5-aminosalicylic acid treatment

Research output: Contribution to journalJournal articleResearchpeer-review

Standard

Development of a Web-based concept for patients with ulcerative colitis and 5-aminosalicylic acid treatment. / Elkjaer, Margarita; Burisch, Johan; Avnstrøm, Søren; Lynge, Elsebeth; Munkholm, Pia.

In: European Journal of Gastroenterology and Hepathology, 2009.

Research output: Contribution to journalJournal articleResearchpeer-review

Harvard

Elkjaer, M, Burisch, J, Avnstrøm, S, Lynge, E & Munkholm, P 2009, 'Development of a Web-based concept for patients with ulcerative colitis and 5-aminosalicylic acid treatment', European Journal of Gastroenterology and Hepathology. https://doi.org/10.1097/MEG.0b013e32832e0a18

APA

Elkjaer, M., Burisch, J., Avnstrøm, S., Lynge, E., & Munkholm, P. (2009). Development of a Web-based concept for patients with ulcerative colitis and 5-aminosalicylic acid treatment. European Journal of Gastroenterology and Hepathology. https://doi.org/10.1097/MEG.0b013e32832e0a18

Vancouver

Elkjaer M, Burisch J, Avnstrøm S, Lynge E, Munkholm P. Development of a Web-based concept for patients with ulcerative colitis and 5-aminosalicylic acid treatment. European Journal of Gastroenterology and Hepathology. 2009. https://doi.org/10.1097/MEG.0b013e32832e0a18

Author

Elkjaer, Margarita ; Burisch, Johan ; Avnstrøm, Søren ; Lynge, Elsebeth ; Munkholm, Pia. / Development of a Web-based concept for patients with ulcerative colitis and 5-aminosalicylic acid treatment. In: European Journal of Gastroenterology and Hepathology. 2009.

Bibtex

@article{2b8c9c909c6c11debc73000ea68e967b,
title = "Development of a Web-based concept for patients with ulcerative colitis and 5-aminosalicylic acid treatment",
abstract = "BACKGROUND: Ulcerative colitis (UC) is a lifelong disease with increasing incidence. UC requires frequent outpatient clinic visits and continuous medical treatment. Web-based self-management in other chronic diseases influences disease course, and increases self-adherence, compliance and quality of life (QoL). Lack of easy access to inflammatory bowel disease clinics and patient education, their understanding of the importance of early treatment at relapse, poor compliance and self-adherence can be partly solved by a newly developed Web-based concept. AIMS: To describe the development and validation of the Web-based 'Constant-Care' concept. METHODS: A Web-based treatment program (www.constant-care.dk) and a Patient Educational Centre for UC patients were developed. The feasibility and acceptance of the concept was validated before (group A) and 6 months after (group B) the start of a randomized controlled trial. Patients' level of disease-specific knowledge, QoL, anxiety and depression were evaluated. RESULTS: Ten (group A) and 11 (group B) patients fulfilling the diagnostic criteria of mild-to-moderate UC participated in the study. All patients reported an ability to initiate self-treatment after the educational training (ET). A significant increase in knowledge from 36 to 69% (group A) and 28 to 75% (group B) was obtained. A majority of the patients were satisfied with the ET. Patients' QoL, anxiety, depression and general well-being showed no difference after the ET. CONCLUSION: Patient education and training through a Web-based program (www.constant-care.dk) seems to be a feasible concept for increasing patients' ability to self-initiate treatment and increase the level of disease-specific knowledge. Relevant adjustment of the concept was implemented. The final outcome of the 'Constant-Care' concept is pending.",
author = "Margarita Elkjaer and Johan Burisch and S{\o}ren Avnstr{\o}m and Elsebeth Lynge and Pia Munkholm",
year = "2009",
doi = "10.1097/MEG.0b013e32832e0a18",
language = "English",
journal = "European Journal of Gastroenterology and Hepatology",
issn = "0954-691X",
publisher = "Lippincott Williams & Wilkins, Ltd.",

}

RIS

TY - JOUR

T1 - Development of a Web-based concept for patients with ulcerative colitis and 5-aminosalicylic acid treatment

AU - Elkjaer, Margarita

AU - Burisch, Johan

AU - Avnstrøm, Søren

AU - Lynge, Elsebeth

AU - Munkholm, Pia

PY - 2009

Y1 - 2009

N2 - BACKGROUND: Ulcerative colitis (UC) is a lifelong disease with increasing incidence. UC requires frequent outpatient clinic visits and continuous medical treatment. Web-based self-management in other chronic diseases influences disease course, and increases self-adherence, compliance and quality of life (QoL). Lack of easy access to inflammatory bowel disease clinics and patient education, their understanding of the importance of early treatment at relapse, poor compliance and self-adherence can be partly solved by a newly developed Web-based concept. AIMS: To describe the development and validation of the Web-based 'Constant-Care' concept. METHODS: A Web-based treatment program (www.constant-care.dk) and a Patient Educational Centre for UC patients were developed. The feasibility and acceptance of the concept was validated before (group A) and 6 months after (group B) the start of a randomized controlled trial. Patients' level of disease-specific knowledge, QoL, anxiety and depression were evaluated. RESULTS: Ten (group A) and 11 (group B) patients fulfilling the diagnostic criteria of mild-to-moderate UC participated in the study. All patients reported an ability to initiate self-treatment after the educational training (ET). A significant increase in knowledge from 36 to 69% (group A) and 28 to 75% (group B) was obtained. A majority of the patients were satisfied with the ET. Patients' QoL, anxiety, depression and general well-being showed no difference after the ET. CONCLUSION: Patient education and training through a Web-based program (www.constant-care.dk) seems to be a feasible concept for increasing patients' ability to self-initiate treatment and increase the level of disease-specific knowledge. Relevant adjustment of the concept was implemented. The final outcome of the 'Constant-Care' concept is pending.

AB - BACKGROUND: Ulcerative colitis (UC) is a lifelong disease with increasing incidence. UC requires frequent outpatient clinic visits and continuous medical treatment. Web-based self-management in other chronic diseases influences disease course, and increases self-adherence, compliance and quality of life (QoL). Lack of easy access to inflammatory bowel disease clinics and patient education, their understanding of the importance of early treatment at relapse, poor compliance and self-adherence can be partly solved by a newly developed Web-based concept. AIMS: To describe the development and validation of the Web-based 'Constant-Care' concept. METHODS: A Web-based treatment program (www.constant-care.dk) and a Patient Educational Centre for UC patients were developed. The feasibility and acceptance of the concept was validated before (group A) and 6 months after (group B) the start of a randomized controlled trial. Patients' level of disease-specific knowledge, QoL, anxiety and depression were evaluated. RESULTS: Ten (group A) and 11 (group B) patients fulfilling the diagnostic criteria of mild-to-moderate UC participated in the study. All patients reported an ability to initiate self-treatment after the educational training (ET). A significant increase in knowledge from 36 to 69% (group A) and 28 to 75% (group B) was obtained. A majority of the patients were satisfied with the ET. Patients' QoL, anxiety, depression and general well-being showed no difference after the ET. CONCLUSION: Patient education and training through a Web-based program (www.constant-care.dk) seems to be a feasible concept for increasing patients' ability to self-initiate treatment and increase the level of disease-specific knowledge. Relevant adjustment of the concept was implemented. The final outcome of the 'Constant-Care' concept is pending.

U2 - 10.1097/MEG.0b013e32832e0a18

DO - 10.1097/MEG.0b013e32832e0a18

M3 - Journal article

C2 - 19543101

JO - European Journal of Gastroenterology and Hepatology

JF - European Journal of Gastroenterology and Hepatology

SN - 0954-691X

ER -

ID: 14277578