How NFTs could transform health information exchange

Research output: Contribution to journalJournal articlepeer-review

Standard

How NFTs could transform health information exchange. / Kostick-Quenet, Kristin; Mandl, Kenneth D. ; Minssen, Timo; Cohen, Glenn ; Gasser, Urs; Kohane, Isaac ; McGuire, Amy L. .

In: Science, Vol. 375, No. 6580, 2022, p. 500-502.

Research output: Contribution to journalJournal articlepeer-review

Harvard

Kostick-Quenet, K, Mandl, KD, Minssen, T, Cohen, G, Gasser, U, Kohane, I & McGuire, AL 2022, 'How NFTs could transform health information exchange', Science, vol. 375, no. 6580, pp. 500-502. https://doi.org/10.1126/science.abm2004

APA

Kostick-Quenet, K., Mandl, K. D., Minssen, T., Cohen, G., Gasser, U., Kohane, I., & McGuire, A. L. (2022). How NFTs could transform health information exchange. Science, 375(6580), 500-502. https://doi.org/10.1126/science.abm2004

Vancouver

Kostick-Quenet K, Mandl KD, Minssen T, Cohen G, Gasser U, Kohane I et al. How NFTs could transform health information exchange. Science. 2022;375(6580):500-502. https://doi.org/10.1126/science.abm2004

Author

Kostick-Quenet, Kristin ; Mandl, Kenneth D. ; Minssen, Timo ; Cohen, Glenn ; Gasser, Urs ; Kohane, Isaac ; McGuire, Amy L. . / How NFTs could transform health information exchange. In: Science. 2022 ; Vol. 375, No. 6580. pp. 500-502.

Bibtex

@article{2c5615e714c849f99871f8b7afd65ad8,
title = "How NFTs could transform health information exchange",
abstract = "Personal (sometimes called “protected”) health information (PHI) is highly valued (1) and will become centrally important as big data and machine learning move to the forefront of health care and translational research. The current health information exchange (HIE) market is dominated by commercial and (to a lesser extent) not-for-profit entities and typically excludes patients. This can serve to undermine trust and create incentives for sharing data (2). Patients have limited agency in deciding which of their data is shared, with whom, and under what conditions. Within this context, new forms of digital ownership can inspire a digital marketplace for patient-controlled health data. We argue that nonfungible tokens (NFTs) or NFT-like frameworks can help incentivize a more democratized, transparent, and efficient system for HIE in which patients participate in decisions about how and with whom their PHI is shared.",
keywords = "Faculty of Law, nonfungible tokens, health data, blockchain, smart contracts, cybersecurity, technology governance, data sharing, IP",
author = "Kristin Kostick-Quenet and Mandl, {Kenneth D.} and Timo Minssen and Glenn Cohen and Urs Gasser and Isaac Kohane and McGuire, {Amy L.}",
year = "2022",
doi = "10.1126/science.abm2004",
language = "English",
volume = "375",
pages = "500--502",
journal = "Science",
issn = "0036-8075",
publisher = "American Association for the Advancement of Science",
number = "6580",

}

RIS

TY - JOUR

T1 - How NFTs could transform health information exchange

AU - Kostick-Quenet, Kristin

AU - Mandl, Kenneth D.

AU - Minssen, Timo

AU - Cohen, Glenn

AU - Gasser, Urs

AU - Kohane, Isaac

AU - McGuire, Amy L.

PY - 2022

Y1 - 2022

N2 - Personal (sometimes called “protected”) health information (PHI) is highly valued (1) and will become centrally important as big data and machine learning move to the forefront of health care and translational research. The current health information exchange (HIE) market is dominated by commercial and (to a lesser extent) not-for-profit entities and typically excludes patients. This can serve to undermine trust and create incentives for sharing data (2). Patients have limited agency in deciding which of their data is shared, with whom, and under what conditions. Within this context, new forms of digital ownership can inspire a digital marketplace for patient-controlled health data. We argue that nonfungible tokens (NFTs) or NFT-like frameworks can help incentivize a more democratized, transparent, and efficient system for HIE in which patients participate in decisions about how and with whom their PHI is shared.

AB - Personal (sometimes called “protected”) health information (PHI) is highly valued (1) and will become centrally important as big data and machine learning move to the forefront of health care and translational research. The current health information exchange (HIE) market is dominated by commercial and (to a lesser extent) not-for-profit entities and typically excludes patients. This can serve to undermine trust and create incentives for sharing data (2). Patients have limited agency in deciding which of their data is shared, with whom, and under what conditions. Within this context, new forms of digital ownership can inspire a digital marketplace for patient-controlled health data. We argue that nonfungible tokens (NFTs) or NFT-like frameworks can help incentivize a more democratized, transparent, and efficient system for HIE in which patients participate in decisions about how and with whom their PHI is shared.

KW - Faculty of Law

KW - nonfungible tokens

KW - health data

KW - blockchain

KW - smart contracts

KW - cybersecurity

KW - technology governance

KW - data sharing

KW - IP

U2 - 10.1126/science.abm2004

DO - 10.1126/science.abm2004

M3 - Journal article

C2 - 35113709

VL - 375

SP - 500

EP - 502

JO - Science

JF - Science

SN - 0036-8075

IS - 6580

ER -

ID: 279428921