Multi-morbidity: A patient perspective on navigating the health care system and everyday life
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Multi-morbidity : A patient perspective on navigating the health care system and everyday life. / Ørtenblad, Lisbeth; Meillier, Lucette; Jønsson, Alexandra R.
In: Chronic Illness, 2018.Research output: Contribution to journal › Journal article › Research › peer-review
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TY - JOUR
T1 - Multi-morbidity
T2 - A patient perspective on navigating the health care system and everyday life
AU - Ørtenblad, Lisbeth
AU - Meillier, Lucette
AU - Jønsson, Alexandra R.
PY - 2018
Y1 - 2018
N2 - Objective: The importance of everyday life when managing the burden of treatment is rarely studied. This article explores the burden of treatment among people with multi-morbidity by investigating the tension between everyday life and the health care system.Method: This was an ethnographic study using individual interviews and participant-observations. An inductive analytical approach was applied, moving from observations and results to broader generalisations.Results: People with multi-morbidity experience dilemmas related to their individual priorities in everyday life and the management of their treatment burdens. Dilemmas were identified within three domains: family and social life; work life; agendas and set goals in appointments with health professionals. Individual resources and priorities in everyday life play a dominant role in resolving dilemmas and navigating the tension between everyday life and the health care system.Discussion: People with multi-morbidity are seldom supported by health professionals in resolving the dilemmas they must face. This study suggests an increased focus on patient-centredness and argues in favour of planning health care through cooperation between health professionals and people with multi-morbidity in a way that integrates both health and everyday life priorities.
AB - Objective: The importance of everyday life when managing the burden of treatment is rarely studied. This article explores the burden of treatment among people with multi-morbidity by investigating the tension between everyday life and the health care system.Method: This was an ethnographic study using individual interviews and participant-observations. An inductive analytical approach was applied, moving from observations and results to broader generalisations.Results: People with multi-morbidity experience dilemmas related to their individual priorities in everyday life and the management of their treatment burdens. Dilemmas were identified within three domains: family and social life; work life; agendas and set goals in appointments with health professionals. Individual resources and priorities in everyday life play a dominant role in resolving dilemmas and navigating the tension between everyday life and the health care system.Discussion: People with multi-morbidity are seldom supported by health professionals in resolving the dilemmas they must face. This study suggests an increased focus on patient-centredness and argues in favour of planning health care through cooperation between health professionals and people with multi-morbidity in a way that integrates both health and everyday life priorities.
U2 - 10.1177/1742395317731607
DO - 10.1177/1742395317731607
M3 - Journal article
C2 - 28914088
JO - Chronic Illness
JF - Chronic Illness
SN - 1742-3953
ER -
ID: 196003573