What the doctor doesn’t know: Discarded patient knowledge of older adults with multimorbidity
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What the doctor doesn’t know : Discarded patient knowledge of older adults with multimorbidity. / Joensson, Alexandra B.Ryborg; Guassora, Ann Dorrit; Freil, Morten; Reventlow, Susanne.
In: Chronic Illness, Vol. 16, No. 3, 2020, p. 212-225.Research output: Contribution to journal › Journal article › Research › peer-review
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TY - JOUR
T1 - What the doctor doesn’t know
T2 - Discarded patient knowledge of older adults with multimorbidity
AU - Joensson, Alexandra B.Ryborg
AU - Guassora, Ann Dorrit
AU - Freil, Morten
AU - Reventlow, Susanne
PY - 2020
Y1 - 2020
N2 - Objectives: Adherence to treatment has proven to require the involvement of patients in treatment and care planning. This process involves incorporating patient knowledge, or knowledge about the patients’ everyday life, into the clinical encounter. This article explores the disclosure practices of such knowledge from older adults with multimorbidity. Methods: This was an 18-month qualitative study among 14 older adults with multimorbidity living in Denmark. A thematic analysis was applied, focusing on perceptions of patient knowledge and disclosure practices among the participating patients. Results: Older adults with multimorbidity have various reasons for not disclosing personal knowledge. The results present three different domains of what we termed discarded patient knowledge: (1) knowledge that had no direct biomedical relevance from participants’ perspective; (2) knowledge considered too private; and (3) knowledge assumed to position one as inferior. Discussion: The participants made judgments on what they believed was welcome in the clinical encounter, framing their knowledge within the purview of biomedicine. Participants’ disclosure practices showed that personal knowledge is sometimes not recognized as important for health and care by participants themselves. Knowledge that could have influenced practitioners’ understanding of the problem and provided different solutions, is argued to be discarded patient knowledge.
AB - Objectives: Adherence to treatment has proven to require the involvement of patients in treatment and care planning. This process involves incorporating patient knowledge, or knowledge about the patients’ everyday life, into the clinical encounter. This article explores the disclosure practices of such knowledge from older adults with multimorbidity. Methods: This was an 18-month qualitative study among 14 older adults with multimorbidity living in Denmark. A thematic analysis was applied, focusing on perceptions of patient knowledge and disclosure practices among the participating patients. Results: Older adults with multimorbidity have various reasons for not disclosing personal knowledge. The results present three different domains of what we termed discarded patient knowledge: (1) knowledge that had no direct biomedical relevance from participants’ perspective; (2) knowledge considered too private; and (3) knowledge assumed to position one as inferior. Discussion: The participants made judgments on what they believed was welcome in the clinical encounter, framing their knowledge within the purview of biomedicine. Participants’ disclosure practices showed that personal knowledge is sometimes not recognized as important for health and care by participants themselves. Knowledge that could have influenced practitioners’ understanding of the problem and provided different solutions, is argued to be discarded patient knowledge.
KW - aging
KW - multimorbidity
KW - patient communication
KW - patient involvement
KW - Patient knowledge
U2 - 10.1177/1742395318796173
DO - 10.1177/1742395318796173
M3 - Journal article
C2 - 30213205
AN - SCOPUS:85058527325
VL - 16
SP - 212
EP - 225
JO - Chronic Illness
JF - Chronic Illness
SN - 1742-3953
IS - 3
ER -
ID: 213854457