How do women with lupus manage fatigue?

How do women with lupus manage fatigue? A focus group study

Research output: Contribution to journal › Journal article › Research › peer-review

Standard

How do women with lupus manage fatigue? A focus group study. / Kier, Anne Ørnholt; Midtgaard, Julie; Hougaard, Karin Sørig; Berggreen, Anja; Bukh, Gunhild; Baronaite Hansen, Renata; Dreyer, Lene.

In: Clinical Rheumatology, Vol. 35, No. 8, 08.2016, p. 1957-1965.

Research output: Contribution to journal › Journal article › Research › peer-review

Harvard

Kier, AØ, Midtgaard, J, Hougaard, KS, Berggreen, A, Bukh, G, Baronaite Hansen, R & Dreyer, L 2016, 'How do women with lupus manage fatigue? A focus group study', Clinical Rheumatology, vol. 35, no. 8, pp. 1957-1965. https://doi.org/10.1007/s10067-016-3307-9

APA

Kier, A. Ø., Midtgaard, J., Hougaard, K. S., Berggreen, A., Bukh, G., Baronaite Hansen, R., & Dreyer, L. (2016). How do women with lupus manage fatigue? A focus group study. Clinical Rheumatology, 35(8), 1957-1965. https://doi.org/10.1007/s10067-016-3307-9

Vancouver

Kier AØ, Midtgaard J, Hougaard KS, Berggreen A, Bukh G, Baronaite Hansen R et al. How do women with lupus manage fatigue? A focus group study. Clinical Rheumatology. 2016 Aug;35(8):1957-1965. https://doi.org/10.1007/s10067-016-3307-9

Author

Kier, Anne Ørnholt ; Midtgaard, Julie ; Hougaard, Karin Sørig ; Berggreen, Anja ; Bukh, Gunhild ; Baronaite Hansen, Renata ; Dreyer, Lene. / How do women with lupus manage fatigue? A focus group study. In: Clinical Rheumatology. 2016 ; Vol. 35, No. 8. pp. 1957-1965.

Bibtex

@article{0fe04ff733634344bb00c4963ca33f8a,

title = "How do women with lupus manage fatigue?: A focus group study",

abstract = "Objective: Half of patients with systemic lupus erythematosus (SLE) consider fatigue to be the most disabling disease symptom. To develop and promote strategies to prevent and control fatigue, this study aimed to describe how women with SLE manage the experience of fatigue.Methods: Four focus groups were conducted with 27 women with SLE, and data were analyzed by means of framework analysis. Two patient representatives with SLE were part of the investigator team.Results: The analysis revealed three main themes (i.e., learning how to be open about fatigue, learning to listen to the body, and learning to accept fatigue) and six sub-themes (i.e., the search for recognition, legitimization, planning and prioritizing, the body{\textquoteright}s limits and self-indulgence, adjusting life to comply with resources, and acceptance of dependence).Conclusion: Fatigue is the controlling element in everyday life of women with SLE. Patients try to integrate fatigue into their everyday lives by attempting to control it and meet the challenges of structure and planning. This study indicates a need for clinicians to acknowledge patients{\textquoteright} fatigue, including supporting patients{\textquoteright} own resources, offering information, and conversation about fatigue, as well as involving patients{\textquoteright} relatives.",

keywords = "Fatigue, Focus group, Management, Patient representatives, Salutogenesis, SLE",

author = "Kier, {Anne {\O}rnholt} and Julie Midtgaard and Hougaard, {Karin S{\o}rig} and Anja Berggreen and Gunhild Bukh and {Baronaite Hansen}, Renata and Lene Dreyer",

year = "2016",

month = aug,

doi = "10.1007/s10067-016-3307-9",

language = "English",

volume = "35",

pages = "1957--1965",

journal = "Clinical Rheumatology",

issn = "0770-3198",

publisher = "Springer",

number = "8",