Longitudinal Trajectories of Health Related Quality of Life in Danish Family Members of Individuals with Severe Brain Injury
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Longitudinal Trajectories of Health Related Quality of Life in Danish Family Members of Individuals with Severe Brain Injury. / Norup, Anne; Snipes, Daniel J. ; Siert, Lars; Mortensen, Erik Lykke; Perrin, Paul B. ; Arango-Lasprilla, Juan Carlos.
In: The Australian Journal of Rehabilitation Counselling, Vol. 19, No. 2, 2013, p. 71-83.Research output: Contribution to journal › Journal article › Research › peer-review
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TY - JOUR
T1 - Longitudinal Trajectories of Health Related Quality of Life in Danish Family Members of Individuals with Severe Brain Injury
AU - Norup, Anne
AU - Snipes, Daniel J.
AU - Siert, Lars
AU - Mortensen, Erik Lykke
AU - Perrin, Paul B.
AU - Arango-Lasprilla, Juan Carlos
PY - 2013
Y1 - 2013
N2 - Scant research has examined health-related quality of life (HRQoL) in family members of patients with severe brain injury, even less has been done in Scandinavian countries, and none has examined this construct longitudinally. The current study therefore used multilevel modelling to investigate the trajectories of HRQoL in 94 Danish family members of patients with severe brain injury at five time points, beginning at the patient's stay in a neuro intensive care unit through one year after injury. The family members’ HRQoL scores significantly and strongly increased over time, and Role Limitations – Emotional scores were higher when patients had high Rancho Los Amigos Scale scores at admission to early intensive rehabilitation in hospital. These results suggest that the acute and sub-acute periods after brain injury are an extremely difficult time psychologically for many families, and family-based mental health interventions during the acute and sub-acute phases are critical, especially for families who have a patient with severe deficits.
AB - Scant research has examined health-related quality of life (HRQoL) in family members of patients with severe brain injury, even less has been done in Scandinavian countries, and none has examined this construct longitudinally. The current study therefore used multilevel modelling to investigate the trajectories of HRQoL in 94 Danish family members of patients with severe brain injury at five time points, beginning at the patient's stay in a neuro intensive care unit through one year after injury. The family members’ HRQoL scores significantly and strongly increased over time, and Role Limitations – Emotional scores were higher when patients had high Rancho Los Amigos Scale scores at admission to early intensive rehabilitation in hospital. These results suggest that the acute and sub-acute periods after brain injury are an extremely difficult time psychologically for many families, and family-based mental health interventions during the acute and sub-acute phases are critical, especially for families who have a patient with severe deficits.
U2 - 10.1017/jrc.2013.12
DO - 10.1017/jrc.2013.12
M3 - Journal article
VL - 19
SP - 71
EP - 83
JO - The Australian Journal of Rehabilitation Counselling
JF - The Australian Journal of Rehabilitation Counselling
SN - 1323-8922
IS - 2
ER -
ID: 76612446