Biobanking: Ethical Issues
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Biobanking : Ethical Issues. / Hoeyer, Klaus .
International Encyclopedia of the Social & Behavioral Sciences: (Second Edition). ed. / James D. Wright. 2. ed. Elsevier, 2015. p. 604-609.Research output: Chapter in Book/Report/Conference proceeding › Encyclopedia chapter › Research › peer-review
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TY - ENCYC
T1 - Biobanking
T2 - Ethical Issues
AU - Hoeyer, Klaus
PY - 2015
Y1 - 2015
N2 - This article outlines the main ethical issues debated in relation to population-based genetic research biobanks. There aremany types of biobanking, but few have attracted as much ethical attention as population-based ones. Some possible reasonsfor this are discussed along with considerations of the political landscape of biobank ethics before the themes dominating theliterature are presented: consent to participation; good governance; fairness and reciprocity; commercialization; trust andtrustworthiness; and unintended effects such as breaches of confidentiality and privacy, surveillance, and social changes.
AB - This article outlines the main ethical issues debated in relation to population-based genetic research biobanks. There aremany types of biobanking, but few have attracted as much ethical attention as population-based ones. Some possible reasonsfor this are discussed along with considerations of the political landscape of biobank ethics before the themes dominating theliterature are presented: consent to participation; good governance; fairness and reciprocity; commercialization; trust andtrustworthiness; and unintended effects such as breaches of confidentiality and privacy, surveillance, and social changes.
U2 - 10.1016/B978-0-08-097086-8.82057-7
DO - 10.1016/B978-0-08-097086-8.82057-7
M3 - Encyclopedia chapter
SN - 9780080970868
SP - 604
EP - 609
BT - International Encyclopedia of the Social & Behavioral Sciences
A2 - Wright, James D.
PB - Elsevier
ER -
ID: 135738300