Social participation in young people with nonepileptic seizures (NES): A qualitative study of managing legitimacy in everyday life

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This qualitative study explored social participation in young people with nonepileptic seizures (NES), particularly how legitimacy of illness is managed in everyday life. Young people with NES, all female and aged between 14 and 24 years (N=11), were interviewed and followed up over a 14-month period. The transcripts were analyzed using thematic analysis. Four main themes were elaborated: 1) Delegitimizing experiences from families, schoolteachers, colleagues, and employers were part of everyday life. 2) Fear of being exposed to delegitimizing events resulted in the young people trying to conceal the diagnosis; for some, this resulted in isolation from all social arenas, apart from their closest relationships. 3) Support from close relationships was protective against delegitimization and contributed towards greater social participation. 4) Perceiving NES as a legitimate disorder contributed to increased social participation. We found a relationship between legitimacy of illness experienced by the participants and the extent to which they either participated or retreated socially. Those who had an illness perception that was personally meaningful experienced their condition as being more legitimate and participated more socially.

Original languageEnglish
JournalEpilepsy & Behavior
Volume57
Issue numberPt A
Pages (from-to)23-28
Number of pages6
ISSN1525-5050
DOIs
Publication statusPublished - Apr 2016
Externally publishedYes

Bibliographical note

Copyright © 2016 Elsevier Inc. All rights reserved.

    Research areas

  • Adolescent, Female, Follow-Up Studies, Health Knowledge, Attitudes, Practice, Humans, Interviews as Topic, Male, Qualitative Research, Seizures/diagnosis, Social Isolation, Social Participation, Young Adult

ID: 278488415