Perceptions of parents on the participation of their infants in clinical research

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Standard

Perceptions of parents on the participation of their infants in clinical research. / Gammelgaard, A; Knudsen, Lisbeth E.; Bisgaard, H.

In: Archives of Disease in Childhood, Vol. 91, No. 12, 2006, p. 977-80.

Research output: Contribution to journal › Journal article › Research › peer-review

Harvard

Gammelgaard, A, Knudsen, LE & Bisgaard, H 2006, 'Perceptions of parents on the participation of their infants in clinical research', Archives of Disease in Childhood, vol. 91, no. 12, pp. 977-80. https://doi.org/10.1136/adc.2006.096073

APA

Gammelgaard, A., Knudsen, L. E., & Bisgaard, H. (2006). Perceptions of parents on the participation of their infants in clinical research. Archives of Disease in Childhood, 91(12), 977-80. https://doi.org/10.1136/adc.2006.096073

Vancouver

Gammelgaard A, Knudsen LE, Bisgaard H. Perceptions of parents on the participation of their infants in clinical research. Archives of Disease in Childhood. 2006;91(12):977-80. https://doi.org/10.1136/adc.2006.096073

Author

Gammelgaard, A ; Knudsen, Lisbeth E. ; Bisgaard, H. / Perceptions of parents on the participation of their infants in clinical research. In: Archives of Disease in Childhood. 2006 ; Vol. 91, No. 12. pp. 977-80.

Bibtex

@article{113c8a900cd211df825d000ea68e967b,
title = "Perceptions of parents on the participation of their infants in clinical research",
abstract = "OBJECTIVE: To analyse the motivations and perceptions of parents on the participation of their infants and young children in a comprehensive and invasive clinical research study. METHODS: Semistructured qualitative interviews were conducted with 23 mothers with asthma whose infants and young children were participating in the Copenhagen Prospective Study on Asthma in Childhood. The interviews were audiotaped, transcribed and analysed using the template analysis method. RESULTS: Parents were motivated by altruism and by the opportunity to get their child checked regularly by medical experts to prevent the possible development of asthma. Parents found it very important that their children enjoyed their visits to the research clinic, and that they could withdraw from the study if their child started responding negatively to those visits. No apparent difference was seen in the attitude between the parents of children with lung or skin symptoms and those of healthy children. CONCLUSIONS: It is possible to design and accomplish invasive clinical research on infants and young children in a manner that parents find ethically sound.",
author = "A Gammelgaard and Knudsen, {Lisbeth E.} and H Bisgaard",
note = "Keywords: Altruism; Asthma; Attitude to Health; Biomedical Research; Child, Preschool; Denmark; Humans; Infant; Infant, Newborn; Mothers; Motivation; Perception; Prospective Studies",
year = "2006",
doi = "10.1136/adc.2006.096073",
language = "English",
volume = "91",
pages = "977--80",
journal = "Archives of Disease in Childhood",
issn = "0003-9888",
publisher = "B M J Group",
number = "12",

}

RIS

TY - JOUR

T1 - Perceptions of parents on the participation of their infants in clinical research

AU - Gammelgaard, A

AU - Knudsen, Lisbeth E.

AU - Bisgaard, H

N1 - Keywords: Altruism; Asthma; Attitude to Health; Biomedical Research; Child, Preschool; Denmark; Humans; Infant; Infant, Newborn; Mothers; Motivation; Perception; Prospective Studies

PY - 2006

Y1 - 2006

N2 - OBJECTIVE: To analyse the motivations and perceptions of parents on the participation of their infants and young children in a comprehensive and invasive clinical research study. METHODS: Semistructured qualitative interviews were conducted with 23 mothers with asthma whose infants and young children were participating in the Copenhagen Prospective Study on Asthma in Childhood. The interviews were audiotaped, transcribed and analysed using the template analysis method. RESULTS: Parents were motivated by altruism and by the opportunity to get their child checked regularly by medical experts to prevent the possible development of asthma. Parents found it very important that their children enjoyed their visits to the research clinic, and that they could withdraw from the study if their child started responding negatively to those visits. No apparent difference was seen in the attitude between the parents of children with lung or skin symptoms and those of healthy children. CONCLUSIONS: It is possible to design and accomplish invasive clinical research on infants and young children in a manner that parents find ethically sound.

AB - OBJECTIVE: To analyse the motivations and perceptions of parents on the participation of their infants and young children in a comprehensive and invasive clinical research study. METHODS: Semistructured qualitative interviews were conducted with 23 mothers with asthma whose infants and young children were participating in the Copenhagen Prospective Study on Asthma in Childhood. The interviews were audiotaped, transcribed and analysed using the template analysis method. RESULTS: Parents were motivated by altruism and by the opportunity to get their child checked regularly by medical experts to prevent the possible development of asthma. Parents found it very important that their children enjoyed their visits to the research clinic, and that they could withdraw from the study if their child started responding negatively to those visits. No apparent difference was seen in the attitude between the parents of children with lung or skin symptoms and those of healthy children. CONCLUSIONS: It is possible to design and accomplish invasive clinical research on infants and young children in a manner that parents find ethically sound.

U2 - 10.1136/adc.2006.096073

DO - 10.1136/adc.2006.096073

M3 - Journal article

C2 - 16820387

VL - 91

SP - 977

EP - 980

JO - Archives of Disease in Childhood

JF - Archives of Disease in Childhood

SN - 0003-9888

IS - 12

ER -

ID: 17273327